Meghan King Edmonds Reveals Her Son Has “Irreversible Brain Damage”07/08/2019
Meghan King Edmonds has penned a blog entry in which she opens up about something personal and painful.
Titled “My Hart,” this post by the former Real Housewives of Orange County star delves in the state of Hart, one of her twin boys, who was born along with brother Hayes in June of 2018.
“From the minute he was born I knew something was different with Hart,” wrote the long-time Bravo personality over this past weekend, adding:
“The nurses struggled to straighten his legs to measure his length. He suckled hard, shallow, and often until I bled and he spit up black.”
Edmonds, who was recently in the news because her husband has been accused of having an affair while she was pregnant with these boys, went on to write that she took Hart to see a pediatric ophthalmologist for a couple of reasons:
He couldn’t see his hands, for example, and his eyes remained crossed for too long.
The reality star says she was told nothing was the matter with Hart, but she refused to accept this as an answer.
“I just knew,” Meghan continues.
“I told our pediatrician – she said he was fine. I begged for a neurologist referral and when I got it – he said he was fine. I then begged for a neurologist who specializes in Cerebral Palsy (I jumped through hoops to get this appointment, so many hoops) and she said he might be fine.
“I then begged for an MRI.”
Via “an elective MRI with anesthesia,” as Edmonds describes it, a diagnosis was finally made.
“I sat at a table with my husband for an hour as we waited for Hart to come out of the MRI. Tears gushed from my eyes as I blankly stared at the cars on the highway – but I wasn’t crying,” she recalled in this blog post.
“My husband asked me what he could do. ‘Get me a Coke.’ Those tears were for a lot of things, but mostly the unknown and mostly Hart.”
Three days after the exam, the toddler’s neurologist called.
He relayed the awful news.
“Hart has minor Periventricular Leukomalacia on both sides of his brain (namely the white matter), but more so on his right,” Edmonds revealed, explaining in further detail:
“She said that this explains all of my concerns: the rigidity in his muscles, the (somewhat) delayed physical milestones, the lack of fluidity with arm and leg movements, the stiffness in joints, the weakness in his lower back, the somewhat favored use of his right side.
“She told me this mainly occurs in premies and since he was not a premie (he was born at 37 weeks gestation) she believes this damage somehow occurred ‘a couple months before he was born.’
“She explained that he is at risk for being diagnosed with Cerebral Palsy and will be monitored.”
Edmonds previously opened up about her reaction to her husband’s misdeeds.
But this admission is even more raw and unimaginable.
“Hart has irreversible brain damage, it’s called PVL,” Meghan says. “Like I said, I already knew.”
Referencing her husband and his reaction, along with how she chose to view the situation, Edmonds adds:
“That night Jimmy and I went out to dinner for the first time in weeks.
“I explained to Jimmy how we are not somehow compromised or punished for having a child with special needs (whatever that may or may not mean!), we are BLESSED. I will go on about this another time but just know that I do not see his diagnosis as anything but a gift: we were chosen to take on this special person.
“I truly feel as if we’ve doubled down and won the underdog hand. Truly.”
And Edmonds is stillt trying tomake the best out of the situation.
She’s still trying to remain as positive as possible.
“I pray for a miracle and I grapple with how to navigate his life,” she wrote.
“This is a heavy challenge as a mother: where do we go from here? This is where: one foot in front of the other.”
We applaud Edmonds for her candid post and we send her and her loved ones the very best during this difficult journey.
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